Ryan's Story

EMAIL Ryan HERE
 

Six years ago, I had everything I could ever want—a happy marriage, a good job and we had just purchased our first home.  Amazingly and unfortunately, in less than a year that drastically changed.
 
I was a military public affairs officer in Texas.  My job required long hours and frequent, long trips away from home.  My first Southwest Asia deployment came on the heals of a four-month training stint on the East Coast.  That marked eight months of our second year of marriage spent apart. 


My wife had a very difficult time handling the time  apart.  She was often inconsolable.  Between work and trying to comfort her, I was under a lot of stress. At some point I became depressed.
 

Then while serving in the Saudi Arabia, I began to feel strange.  Everything difficult became easy.  A multitude of sounds, like the wind, fell into a rhythmic pattern.  Colors, light, numbers and language formed exhilaratingly intricate patterns intertwined by connections, or a common thread of meaning.  I was manic for the first time.
 
Despite embarrassing myself with overzealous, rambling emails, my illness managed to go unnoticed until I arrived home in Texas.  My wife noticed the change in me immediately and had me take a self-test for bipolar disorder.  I answered “yes” to almost every question, but yet I denied that there was anything wrong.  Still, I appeased her by going to the doctor.
 
There wasn’t a psychiatrist on the base, so I went to see a general practice physician. This was the worst mistake I made.  He could tell that I had been under a lot of stress and had been down, so he prescribed me Zoloft. The antidepressant sent my mania through the roof.  A couple of days later, at my protestation, I was hospitalized.
 
My first experience in a military hospital was a memorable one.  I was so paranoid that I thought I was part of a military experiment designed to test my loyalty and/or prepare me for advancement.  I thought doctors and the other patients were actors paid to represent abstract inner feelings of mine.
 

I was in psychosis.
 
I was treated with Ativan originally to calm me down, then Zyprexa or Olanzipine was added and Ativan was dropped.  It’s funny to me, I recall  writing a song praising Zyprexa while I was there.  Little did I know what problems it would cause for me.
 
I entered the hospital at 200 pounds.  Six weeks later I was 240.  Depakote was added to the Zyprexa shortly after leaving the hospital.  With the two weight-gaining drugs tag teaming me, I was nearly  300 pounds before the year was over.
 
 Worst of all, during my time in the hospital I was terrible to my wife. Psychosis caused me to believe that my wife and I were not meant to be together. The reality behind that was, I was bitter at her for sending me to the hospital when I had been so supportive of her.  She told me she would stand behind me no matter what.  I told her I wanted a divorce.   We separated.
 

In the months that followed discharge from the military, my thinking cleared enough that I realized I was making the biggest mistake of my life. But I could not convince her that the manic Ryan did not represent  my true feelings. We divorced in late 2000.
 
I went into a deep depression.  I returned home to the Midwest and immediately went back to work, but the depression and combination of Olanzipine  and Depakote dulled my mind and ruined my concentration.  I slept as much as 16 hours a day during that period, often not bothering to shower or shave before going to work.  For hours I would stare at my computer screen and accomplish nothing.
 
A new doctor led me to Lithium for the first time.  He slowly tapered me off both Olanzipine and Depakote, and in a short time I felt like a new man. I lost 80 pounds to begin approaching my old weight and I felt new energy and drive at the office.  Unfortunately, that proved too good to be  true.
 
By December of 2001, I was experiencing full-blown mania again.  The lithium had not been enough to cap my high moods and they bubbled over.  I was hospitalized for a third time.  Risperidone was added to my med regimen.
 
Over the next three years, we tried Quetiapine (Seroquel), Olanzipine again, Depakote again and Buspirone without success.  I continued to experience frequent manias with intermittent depression.  All told, I went through fourjobs in four different states in just a few years.  Finally, I moved home with my mother, and started going to the local VA hospital for treatment.
 
During that time, we have tried Ziprasidone (Geodon) and Topamax, both without success.  Only in the last few months have my moods stabilized for the first time on a combination of Lithium, Aripiprazole and Lamotrigine.
 
It’s been a long hard road.  After six hospitalizations, lost jobs and damaged relationships, it can take quite a toll on a person.  But I’m on a military pension now, and I have the opportunity and time to find something I want to do.  It’s an opportunity to find real meaning again.  I hope to resume my  career writing and  editing.

 

 

Electroboy Looks Back: 10-Year Diagnosis         Anniversary

Andy "Electroboy" Behrman

For more than ten years, I was consistently misdiagnosed with depression by more than eight mental health care professionals. I only learned later that this was typical for the bipolar patient. It all began with my first visit to a therapist who diagnosed me with "adolescent depression," and from there I met several doctors along the road who continued not only to diagnose me with depression, but to treat me with medication for depression. Needless to say, this was a disaster, as the medication only served to fuel my mania. In a nutshell, I was being diagnosed improperly because I only visited these doctors during my "low points" or depression, I was not accurately filling them in on my symptoms, and they were not asking enough questions about my mental illness. In retrospect, had I shared more information with them, perhaps it would have been easier for them to diagnose me with bipolar disorder much earlier than any doctor did.
 
But this is all water under the bridge now.
 
When I was finally diagnosed with bipolar disorder (or what I only knew was referred to as manic depression), I was shocked by both the diagnosis and the label "manic depressive." I was a manic depressive. What did that mean? First, I didn't know anyone else with the illness, and I panicked because I thought the illness was degenerative. "Will I make it to my next birthday?" I asked my doctor. I was reassured that I would, but that I would also need to begin a regimen of medication to control my symptoms. Yes, the common ones, which I had not only taken for granted to be "normal" but which were slowly destroying my life. These included racing thoughts, insomnia, overspending, sexual promiscuity, poor judgment and drug and alcohol abuse. All of a sudden, my "lifestyle" was no longer acceptable and had to come to a screeching halt. How could I live on medication with my raging personality tamed? Would I become dull and boring? After all, I had always been "Mister Fun," the guy standing with a lampshade on my head, a margarita in each hand and doing the merengue at parties.

Treatment began. In the course of the next decade, I would try more than 37 different medications to control my bipolar disorder and experienced almost every possible side effect from each medication: muscle stiffness, headaches, agitation, sleeplessness and grogginess, to name a few. Ultimately, when we realized that no combination of medication was going to work for me, I opted for the last resort - electro-convulsive therapy or ECT - which provided me with some relief in the beginning (not to mention the side effect of short term memory loss) until I relapsed three months after the last treatment. It was then that my doctor ordered me to continue "maintenance treatment." I had a total of 19 electroshock treatments, until I realized I had become addicted to the premedication of the procedure and asked my doctor to bring the treatment to a halt.

Needless to say, these were trying years and I was hopeless. I wasn't working, I was collecting disability and receiving financial assistance from my friends and family, and basically I was a "shut in." I never imagined a life outside of my apartment again. And I had been a highly functional public relations agent and art dealer (albeit my illness had landed me in prison for a brief six month stint for counterfeiting). Now I was barely capable of taking care of myself and could only watch television. I didn't even have enough focus to read or write.

But by 1999, there was light at the end of the tunnel for me. My doctor had found a combination of medications that kept me relatively even-keeled, and I was getting back to a more normal life. I was working again and I had reestablished a social life. I was even able to take care of myself. But there was a five-year block of time when I was completely disabled and I just couldn't get over this "lost time." In fact, sometime it prevented me from moving forward.

Of course, as soon as I become "even-keeled" and was functional again, I was certain that my bipolar disorder had gone away - simply vanished. I was wrong. Now I was coping with the illness, and I was tested nearly every day. And although it's been five years since then, I must admit that I still take each day as it comes. I'm always prepared for a relapse; even though I have five years "under my belt" of being relatively "episode free," I'm always on alert.

I'm resigned to living with bipolar disorder for the rest of my life. The fear and shame are gone; I speak about my illness openly with both family and friends and have even ventured out into the public arena, sharing my story of my battle with bipolar disorder in Electroboy: A Memoir of Mania, published by Random House. This was probably the hardest thing I had to do with my illness - to go public. But I did it because I wanted people to know that there were 2.5 million people with bipolar disorder diagnosed in this country - and millions more undiagnosed. And I thought that my sharing my story - a very personal story - would bring people out of the closet to seek treatment, help family members in understanding their loved ones, and also help mental healthcare professionals in treating their patients.

In the spring, the film version of Electroboy will go into production with Tobey Maguire and it will be the first big budget Hollywood movie with a bipolar protagonist. I'm currently working on a sequel to "Electroboy," and I still maintain a mental health website at www.electroboy.com Since my diagnois ten years ago, bipolar disorder has become my mission, an illness I had honestly never heard of until that day and something I never would have imagined I would be doing in ten years. It's been a long journey for me, but a very rewarding one. Learning to cope with the illness has been tremendously satisfying for me, and passing on my knowledge of my coping skills is the most important thing that I can do with my life. And every day I remind people suffering, that there is hope - - you will get better.

 

 

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