I can hardly
believe it has been ten years since I have been diagnosed with bipolar
disorder in November, 1992. I've been through a lot in those years. I
would never have imagined myself where I am right now. The road has
certainly not been an easy one.
My experience with
this illness has actually lasted longer than ten years...it just took a
while to get into treatment and get a diagnosis. I had a lot of problems
with depression when I was young, with my first suicidal gesture at age
12. Unfortunately, I had a mother who really didn't want to acknowledge
that I had any problems and didn't seek any help for me, so my
difficulties went unabated throughout my teen years. I started
self-medicating with alcohol, but was able to hold it together very well,
so much so that nobody ever knew how much I was drinking. I was a straight
A student in high school, a member of the Honor Society, active in sports
and drama programs as well as the band. I was accepted to a prestigious
university that was wonderfully far from home.
Once college
started, I was really in my element. I think that's when I really started
to have some full blown manic episodes, but of course I didn't recognize
that's what they were. I signed up for 19 hours my first semester and
ended up with a 3.8 GPA, despite a lot of drinking, promiscuity, a rape,
and not much sleep. I remember one night I had forgotten to save a paper I
had been working on to a computer disk, and it was due the next day. I
lost the entire paper when the computer froze up. I stayed up all night
and wrote the paper from memory and got an A. Yes, I do believe I was a
bit manic, but I think it helped me out that time. I don't think I would
have made it through freshman year without being manic. I don't even
remember being much depressed during my freshman year.
Sophomore year
came, I changed my major a couple of times, still taking an insane number
of hours every semester and making terrific grades, but things were
starting to come up in my head that were not good. I never had much memory
of when I was very young. My parents had divorced when I was only three,
and my mother remarried when I was six, divorcing again when I was 12.
Those years were all basically a big blur to me. Small bits and pieces
were there, but that was all. The little bits and pieces weren't exactly
happy and carefree, and now memories were surfacing that were even more
disturbing. I was starting to remember terrible acts of abuse at the hands
of my stepfather and stepbrother, things that no child should ever
experience. They were becoming more than memories, they were invading my
dreams and starting to interrupt my waking hours as well with flashbacks.
I wasn't sure what the hell was going on. I couldn't take this anymore, I
didn't know what all of this meant. Was I going crazy? What had I done to
deserve what had happened to me? Finally my roommate convinced me to see
the campus psychologist. She immediately referred me to a local
psychiatrist.
I remember my
first session with this psychiatrist. It was over two hours long, and I
cried and cried. I didn't know how sad I had become until he started
asking me questions. I told him that I had been considering suicide
because the stress and self-loathing had become so great. He convinced me
to try some anti depressant medication. I started Zoloft, but within two
days had deteriorated so much that I was placed in the hospital, where I
stayed for almost three months. I was originally diagnosed with Major
Depressive Disorder, because I presented with all of the symptoms of
depression. We didn't really discuss my previous manic symptoms, and I
didn't know enough to even bring them up. All I knew was that at that
time, I was extremely sad, suicidal, and withdrawn. We tried
antidepressant after antidepressant, but to no avail, none of them brought
me out of my depression. I now know that this is often true of a bipolar
depression, it can be very deep and hard to treat. It got to the point
where my doctor decided to try ECT (electroconvulsive therapy, or shock
treatments). I was only 19 years old at the time, I didn't know any
better, so I agreed. I wish now that I had not, I believe it has had a
permanent and detrimental effect on my memory, but as they say, hindsight
is 20/20.....
During my stay at
the hospital I lost 40 pounds because I had refused to eat. I almost broke
my hand because I had irresistable urges to hurt myself and would punch
concrete walls. I had been strapped down to a gurney and placed in a
"rubber room" once after having a psychotic episode. But, they did
eventually let me out. I couldn't go back to school, I could barely even
think straight. Unfortunately, the reason I seemed to be doing better was
that I was getting manic. So, back to the hospital I went, about two weeks
after I got out after being there for three long months. The only good
thing I can say about that is, they finally realized that I was bipolar
and NOT simply unipolar depressed, and they started me on lithium. Well,
lithium turned me into an emotionless zombie. I think they just had me on
too high of a dose, but I wasn't about to live my life that way, so I
stopped taking it. Of course, I went back on a manic high right away.
There I was, no
job, not in college, had just gotten out of almost four months in a psych
ward, I was living off of my credit cards, so what do I do? I take a nice
trip to visit a friend 1500 miles away, of course, and max out both of my
credit cards in one weekend. I bought clothes, took people out to dinner
that I didn't even know, bought a membership to a health club in a state I
didn't live in, bought expensive facial care products that I STILL have in
my medicine cabinet (remember this was ten years ago...hmmm, maybe i
should throw them away?), and of course the plane tickets. So, when I got
home, I had nothing left to live on.
When I got home, I
felt the depression kicking in. I saw no prospects ahead of me. I didn't
see that I had any usefulness in my life. I didn't want to live. This was
my post-manic crash, and I crashed hard. I was at home, and took every
single pill I could find in my house. I lay down on my couch and figured I
would just fall asleep and die. The only person who had a key to my
apartment, my ex-college roommate, was out of state and would not be back
for a few days. Well, God had another plan. I don't remember this, because
I was already pretty far gone, but she tells me that for some reason she
had come back to town early, and she and her boyfriend came by my
apartment to visit. When they knocked on the door and got no answer, she
used her key to come in and saw me on the couch, with a bunch of empty
pill bottles. She called 911 and I was taken to the hospital where I was
in a coma for two days.
I do remember
waking up, angry that I was still alive. How could I have messed this up?
I told the doctors that when I got out, I would just do it again. I pulled
out IV tubes and tried to get out of the hospital. My doctor convinced my
mother to commit me to the state hospital. That was one of the worst times
of my life. Almost like being in prison (not that I've ever been there,
but I can only imagine). Every move is coordinated and dictated. I was
given all new meds, with all new side effects. I was able to talk my way
out of that place after two weeks. Unfortunately, it was only a few weeks
after that when I attempted suicide again, taking several handfuls of
pills at a park downtown. I got scared and called my doctor, who advised
me to call 911. I went into a bank across the street and asked the woman
behind the desk to call 911 for me, and that's all I remember. I was again
taken to the hospital where I was in ICU for several days, and ended up in
the psych ward for a few weeks.
When I got back
home, my mother had to support me, which after a few months she refused to
do unless I went back to college. I was completely unable to do that.
There were several times when I simply felt unable to deal with life and
had to spend a few days at the mental health crisis center downtown. I
tried to go back to school...my professors had given me incompletes on the
courses I had been taking when I went into the hospital the previous
semester, but when I sat down with the books, it was like I was on Mars. I
had no idea what I was reading. I had to withdraw from college. I felt
like a complete loser. I went back to the doctors and they started me on
new meds. I was exhausted by fatigue as a side effect of meds. I couldn't
hold a job. My mother said she would no longer pay for my apartment since
I wasn't in school, and I couldn't pay for it of course, so I found a guy
to live with, someone I had met in the first hospital (oops, big mistake).
Platonic at first, but how long can that last?
After a while, I
did finally get a job and helped pay my part for the apartment. But I
started having trouble with my meds, as usual, and depression yet again
reared its ugly head. I had only been working at my job for 3 weeks when I
had my third serious suicide attempt in a year. I checked myself into a
hotel, wrote a letter to my boyfriend saying goodbye, and planned on
overdosing and dying. My boyfriend figured out where I was and called my
doctor. My boyfriend showed up at my hotel room, but I barricaded myself
in the bathroom. My doctor told him to call the police. I would not let
anyone into the bathroom, and I took about 90 pills, then flushed the
bottles down the toilet so there would be no "evidence". I lied and told
them I had taken nothing so they would leave, which they did. I then
admitted to my boyfriend what I had done and he took me to the ER where
they pumped my stomach. I was able to persuade the ER doctor to let me go
home, saying that I was no longer suicidal and that I would not hurt
myself. I went back to work the next day. I somehow got myself back
together and seemed to do alright for a while, with a few weekend stays in
the crisis center. Then, I got pregnant a few months later.
We decided to get
married. My pregnancy was the most happy and symptom free time of my life.
I think that having another life to care for and a having a purpose to
live for seemed to help me a great deal. Even though I was taking Tegretol
and an antidepressant (I don’t remember which one) for the first four
months of my pregnancy - I didn't know I was pregnant until then - my
daughter was born perfectly healthy and with no complications in January
1995. I did suffer from post-partum depression, but it was not too severe.
I was able to stay off of medications for a year after giving birth
because I was nursing my daughter. It was a relatively happy time. But all
good things must come to an end.
Depression started
to creep back in again when she was about a year old, and I started
feeling the old urges to self-injure again. My doctor wanted to admit me
to the hospital, but I decided to try an intensive outpatient program
instead. I went through the program for three weeks. It was okay, but what
really got me feeling better was finding out that -yes- I was pregnant
again. I stopped all medications, much earlier in my pregnancy this time,
and had yet another good pregnancy as far as BP goes. A few pregnancy
complications, with preterm labor, a week in the hospital and four weeks
of bedrest, but she turned out perfectly healthy, being born in December
1996.
I went back to
work and started back on medications about six months after my second
daughter was born. I did pretty well at work, getting promoted within six
months to a supervisory position. But, I started having disagreements with
the management, thinking their style was all wrong and that, of course, I
could do a much better job than they could. I got very idealistic and
quit, taking a job at a different hospital with a big cut in pay, just to
assert my "principles". My husband didn't like that very much. With less
money and, essentially, giving myself a demotion (I was no longer a
supervisor), I started experiencing a lot of stress and self-doubt. And
the treatment-resistant nature of my illness started asserting itself, so
after only 8 months at my new job, I found myself so depressed that I was
yet again wanting to self-injure and even becoming suicidal.
I agreed to check
into the hospital. I stayed for two weeks, during which time I underwent
yet another medication change. It was during this hospitalization that I
met the therapist that I still am in treatment with today, she is
absolutely wonderful. After completing my inpatient treatment, I continued
in their intensive outpatient program for about three weeks. My employer
decided I had missed too much work and "let me go", which is a nice way of
saying they fired me. I don't think I would have been able to go back
anyway. I stayed at home with my two young children, which was as much
stress as I could handle. My marriage was starting to get a little bit
shaky, but not too bad at this point. I was very much the obedient wife,
as I did not like conflict, I would always basically agree with anything
my husband wanted to avoid any arguments - it made me feel too much like
when I was a little girl and could not defend myself. All of this
instability I had been going through over these past several years meant I
still had not even begun to deal with the abuse issues of my childhood, so
my husband had a huge edge over me.
I had been at home
for about seven months when I again felt a deep depression come over me. I
began to drink, self-medicating, trying to help myself to forget the pain
that I could not seem to escape. Medications would only work for short
periods of time, then we would have to increase dosages until we reached
maximums, then we would have to search for something new. It was so
frustrating for me, and I would often lose hope of ever feeling better. I
was at such a point yet again in April 1999. I went for a therapy session,
drunk. I had driven there after drinking four wine coolers. I was feeling
completely out of control and suicidal. I went into my therapist's office
and started crying, rocking back and forth, and I just couldn't stop. She
called the police, who took me to the hospital, where I was admitted and
stayed for about a week. They decided to release me even after I had told
them that I did not feel comfortable going home yet. I guess my insurance
had told them no more days, so they let me go anyway. So the day after
they let me go, I got drunk yet again and went to my therapist. This time
when she called 911 they sent an ambulance. I had my purse with me, and I
ended up taking about 50 pills while sitting on a gurney in the ER. I
couldn't take the pain anymore. It seemed as though nobody cared. I mean,
I'm overdosing IN THE EMERGENCY ROOM and NOBODY NOTICED!?? I finally told
the nurse when I felt my heart beating out of my chest. They pumped my
stomach, stabilized me medically and sent me to the psych ward that I had
just been released from the day prior. How surprised they were to see me.
But at least they listened to me that time. I went through yet another
medication change. The nurses suggested that I look for a 30-day dual
diagnosis treatment program, which I proceeded to do while I was still in
the hospital. The program I really wanted to go to eventually decided they
could not take me because my case was too complicated. How about that! I'm
too difficult! But they did give me a referral. The only problem was it
would not be covered by my insurance. I talked to my grandfather, and he
was wonderfully kind and loving enough to pay my way through the program.
I entered the program in June of 1999, and it was one of the best things I
have ever done. I gained self-confidence, self-awareness, understanding of
BP and PTSD, and realized that I could stand up for myself.
Things weren't all
roses and light while I was there. My husband took the opportunity while I
was out of state to close our joint bank account and reopen it in his name
only and to take me off of the health insurance. I think he started to
realize, during my phone calls to him from the treatment center, that I
wasn't going to be a submissive little wimp any more, and he got nervous
and scared. He became more aggressive when I got home, yelling at me more,
pushing me around, sabotaging my car so I would be stuck at home (we lived
in the country) and telling me I could not have a job, so I could have no
money except what he would give me. The months from July to October were
absolutely awful. He would give me $50 a week to buy groceries for a
family of four. I would have to beg him for money to put gas in my car. I
was lucky that I found a county agency where I could see a psychiatrist
and get my psychiatric meds for free, or I would have had even more
problems.
Things kept
escalating between us. He started yelling at me in front of our children.
I finally convinced him to let me have a job, but it was a night shift job
from 8 pm to 2 am. He was to take care of them while I was at work. One
night I returned home, and he was particularly groggy. I couldn't even
move him when I tried to crawl into bed. When I tried to wake him to go to
work in the morning, he would not get up. I soon realized that something
was wrong. I was screaming at him, pouring ice cold water on his face, and
he was barely even moving. I called 911 and they took him to the hospital.
He later admitted to overdosing on Vicodin, and he said he had also taken
some of my medications. He had done this while he was supposed to be
caring for our children! What if something had happened while he was
drugged up? What if there were a fire? I obviously could not continue
working, because I wasn't about to leave the children alone with
him anymore. I think that was his intention all along. His actions were
all about CONTROLLING the situation. If I thought that was the end of it,
I was wrong.
One month later,
he almost killed me. I had finally decided to leave him. I wouldn't take
his abuse any more. I had talked to the Salvation Army, and they were
holding a place in their program for homeless mothers and children for me
and my girls. I had talked to the Battered Women's Shelter, and they
confirmed my suspicions that a man who has taken financial control, and
who has threatened/attempted suicide, and who has started out with pushing
and shoving is a very dangerous person and that I needed to get out of
there. He must have found out somehow. He had asked to take the girls to
Dairy Queen, which I agreed to for fear of tipping him off. I did follow
him, and he passed DQ, and kept driving. I followed him for over 30 miles,
flashing and honking, but he would not pull over. When I finally got ahead
of him and slowed down, he hit my car and ran me off the road. We both
were on the shoulder, and I got out of my car to talk to him, to try and
get him to give me the kids. He started yelling at me about divorce, and
that he'd never let me have the girls. He rolled his window up on my
hands, and proceeded to drive down the highway, dragging me along the side
of his truck. I came loose and ended up in the middle of the highway,
laying across two lanes of traffic. An ambulance just happened to be going
by and stopped to help me...the only reason my husband stopped is because
he had a blowout on his front tire. He somehow convinced the police to let
him go with the children, and he disappeared with them for two weeks. I
ended up in the hospital overnight, thankfully with no serious injuries,
but I had to walk with a cane for a month. I remember crawling to the
bathroom at night because it hurt too much to stand up.
I did get my
children back two weeks later, when we had a court hearing. It took almost
two years, but I also finally got my final divorce from him in Oct. 2001.
Those two years
were not easy. My children and I moved into the homeless shelter and lived
there for ten months. I did find a job, and got health insurance of my
own. I was in contact with the district attorney's office, attempting to
get a protective order against my husband, but that office proceeded to
completely bungle that procedure. I ended up not being able to procure the
protective order because I was unable to miss any more work to go to court
- I did not want to lose my new job.
I kept that job
for just over a year, until a wave of manic behavior took over. The stress
of being a single mother and having a high-stress job took over me. I was
working very hard and was very successful at my job yet again, which is my
usual pattern right before a breakdown. I just couldn't hold things
together anymore. I went into an intensive outpatient program for three
weeks, and went onto short term disability from work. Weeks turned into
months as I started rapid cycling from mania to depression and back again.
My medications did not seem to be working any more. My doctors finally
decided that antidepressants were no longer any good for me and were
actually working against me. Stopping the antidepressants seemed to help a
small bit, but the cycling was intense and scary. In the past, I had
mostly tended towards depression and this cycling up and down with the
manic feelings was something I was not used to.
Within the next
year, I would get very frustrated with what I felt was incompetence and
ineptitude by my doctors. I did not feel that they were listening to me
nor were they willing to make medication changes when my current mix of
medications did not seem to be stopping my cycling. I had three doctors
within that year, until I found my current doctor, who I am finally
comfortable with. My cycling really seems to have calmed down as of the
last several weeks, May 2002, although I am still dealing with some
bothersome side effects, namely weight gain and extreme fatigue. I have
not worked since March of 2001 and am on long-term disability from my last
employer. I am being told that I have to apply for Social Security
Disability in order to continue my private disability, and I am not
looking forward to that process.
My criminal case
of assault against my husband also moved extremely slowly. It did
eventually go to court, almost two and a half years (!) later, where my
now ex-husband pled guilty to assault and got probation, and was assigned
mandatory family violence classes. I was just glad to have the whole case
over at that point, but also glad that he is finally going to go through
some kind of counseling. I am very hopeful that he gets something out of
those classes. Fortunately, the only time I ever have to see him is when
he has visitation with our children, and we exchange our kids at the local
police substation.
I can see how
bipolar disorder has affected many of the decisions I have made throughout
my life, and the paths I have chosen. I certainly do feel that I am a MUCH
stronger person at this point in my life than I was in 1992 when I was
first diagnosed. Back then, I was really afraid of everything and
everyone, I felt very powerless and without hope. Now, while there are
still things in my life that are beyond my control, I don't allow that to
make me fearful. I feel that I have much more going for me now, and I want
to be there for my beautiful children. I want to help other people who are
now in the position I was in back then, who feel helpless and hopeless.
It's not an easy road, that's for sure, but with support one can get
through the rough patches and get their questions answered. I'm sure there
will be more difficulties ahead for me, I don't doubt that for a second,
but I also feel that I'll be able to get through them with the help of my
doctor, my therapist, my friends, and family.